Stories

Holiday Hours – 21’/22′ CFSA will closed from 24/12/21 until 4/12/21 for the Christmas & New Years Holidays Read story

Opening of State Borders As the state borders open, the CF community will be presented with far greater challenges. Along with the protection measures… Read story

CFSA President’s Briefing 17 November 2021 Cystic Fibrosis SA's 4th quarter of 2021 briefing presented by President of the CFSA Board Peter Summers OAM CGSJ Read story

Farewell Nettie Burke After six years with Cystic Fibrosis Australia, Nettie Burke is leaving to start the next chapter of her career. Read story

It’s official! Welcoming our new staff members. Cystic Fibrosis SA officially welcomes Carolyn and Allison to the team in two brand new roles, Administration Officer and Member… Read story

Embracing the Winds of Change After 22 years in the Sturt Street property, we have now decided to move the office and have leased some… Read story

2020 Australian Cystic Fibrosis Data Registry Annual Report The Australian Cystic Fibrosis Data Registry has been collecting data on Australian people with CF for over 21 years. The… Read story

Alarm Bells Following the release of the PBAC March Public Summary Document (PSD) and subsequent conversations with Vertex and the PBAC, I… Read story

Community Questions raised in 2021 CFSA AGM During the 2021 CFSA AGM, several questions were raised by a CFSA member and treated as Other Business in the… Read story

65 Roses Virtual Volunteer On 65 Roses Day we paint the state with roses to raise awareness and funds for children and adults living… Read story

A Tough Pill to Swallow…ACCESS DEFERRED Trikafta was not recommended for reimbursement by the Pharmaceutical Benefits Advisory Committee (PBAC). Having seen the outstanding clinical trial data… Read story

Identifying Vascular Disfunction In CF – Childhood To Adulthood Our deepest and warmest accolades are for Andrew Tai, Paediatric CF Centre Director and researcher at the Women and Children’s… Read story